End of Life Care: Starter Resources

End of Life Care: Starter Resources

By Bethany Slack

Modern medical technology has changed the way we experience serious illness and dying. We have more treatment choices, but they sometimes lead to unnecessary suffering. And how does our faith impact how we want to experience death? No matter our age or stage of life, learning about end of life issues can benefit us and our loved ones.

Unsure of where to start? Here are some books and articles that address the changing landscape of dying, medical technology, decision-making, and faith.

How Modern Medicine impacts Aging and Death

Being Mortal: Medicine and what Matters in the End by Atul Gawande

Hailing from Newton, MA, Dr. Gawande teaches at Harvard Medical School and School of Public Health as well as practicing surgery. He offers a vision of how medical practice could prioritize quality of life throughout the lifespan.  

 

End of Life Decision-Making

The Town Where Everyone Talks Death reported by NPR, 3/5/14

This brief article provides a fascinating peek at what can happen when a community decides to get end of life discussions out in the open.

Aligning a Medical Treatment with God's Plan by Karen Kaplan for the L.A. Times, 3/18/2009

From a secular perspective, Ms. Kaplan explores how faith and spirituality affect end of life decision-making.

Honoring Choices Massachusetts

Ready to make a health care plan for you or a loved one? Honoring Choices MA provides information, tools, and legal forms to help you write down your treatment preferences. Having a written plan helps you get the medical treatment you prefer, from now until the end of life.

Perspectives from Christian Voices

When Prolonging Life Means Prolonging Suffering by Dr. Kathryn Butler for Christianity Today, 9/8/2016

Drawing from her experience as a trauma and critical care surgeon, Dr. Kathryn Butler shares her perspective on dying, medical technology, and faith in God. She asks us to reconsider some common viewpoints in light of Scripture. Dr. Butler resides north of Boston.

The Art of Dying: Living Fully into the Life to Come by Rob Moll

Rob Moll has worked as a journalist, hospice volunteer and with World Vision. Here, he reintroduces the Christian tradition of preparing for a “good death”. In this tradition death becomes a significant spiritual event for both individual and community.

Finishing Well to the Glory of God by Dr. John Dunlop

A specialist in geriatrics, Dr. Dunlop provides nine strategies for navigating the end of life. His strategies are based in both medical knowledge and Scripture. Dr. Dunlop also acknowledges and confronts the cultural limitations of writing as a white, middle-class Christian.

Take Action

Questions or comments on any of these resources?

Contact Bethany

Contact Bethany

Are you looking for information on a topic not addressed here?

Bethany Slack, MPH, MT, is the Public Health and Wellness research associate at EGC. Her passion is to see Jesus’ love translated into improved health and health justice for all, across the lifespan and across the globe.

A Good Death: The Benefits of Talking About End of Life

A Good Death: The Benefits of Talking about End of Life

by Bethany Slack, MPH, MT

“For everything there is a season, and a time for every matter under heaven: a time to be born, and a time to die…” - Ecclesiastes 3:1-2a 

As human beings, we all share the common experiences of birth and death. But we tend to focus our time and energy planning, living out, and seeking to improve our time here on earth. Many of us give little attention to how we wish to experience the end of earthly life.

Passage into extreme old age or the discovery of terminal illness can stir up confusion and conflicting desires. Miscommunication with family and medical staff is common.

If we have avoided discussing End of Life (EOL) issues as families, churches, and communities, there are usually medical, relational, financial, and spiritual ramifications. But open conversation benefits both the individual and the community.

You May Be Surprised To Learn

• Research indicates that 80% of people would like to die at home, yet only about one third do.

• Dying in a hospital is pricier and comes with more aggressive treatments than dying in other facilities or at home.

• Hospice services offer treatments that make a terminally ill person comfortable at the end of life, and more people than ever are choosing to receive hospice care.

• Persons with terminal cancer who are part of a highly supportive spiritual community are more likely to receive aggressive care and die in the hospital, rather than choose hospice or home care.

• Among those with highly supportive spiritual communities, racial/ethnic minorities and those reporting strong reliance on God are even more likely to receive aggressive treatments at the end of life.

Introducing a Boston Public Health and Wellness Initiative

The Public Health and Wellness (PH&W) initiative at the Emmanuel Gospel Center is beginning to explore such end of life questions, building on our ministry partners’ wisdom, insights, and contributions to the field.

Observing the needs of her own congregation, Rev. Gloria White-Hammond, M.D. of Bethel AME Church began Planning Ahead, a ministry to encourage discussion of EOL issues and advance directives.  Michael Balboni, Ph.D., Th.M., affiliated with Harvard Medical School and the Dana-Farber Cancer Institute, has published extensively about the role of spirituality and spiritual care in medicine and end of life care. Both have a desire to see EOL issues more widely engaged in faith communities.

With Dr. White-Hammond and Dr. Balboni, the PH&W initiative is planning a 2017 convening in the Boston area with the hope of connecting pastors and other Christian leaders with medical professionals. We hope to spark a new vision in faith communities of what a “good death” can look like, and how planning for good deaths can benefit and bless our city and society.

Take Action

1. Learn more about the current state of EOL in the United States.

2. Connect with me for further conversation.

Contact Bethany Slack

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3. Financially support the Public Health & Wellness Initiative at EGC.

Bethany Slack, MPH, MT, is the Public Health and Wellness research associate at EGC. Her passion is to see Jesus’ love translated into improved health and health justice for all, across the lifespan and across the globe.

Churches: Community Development is the New Community Service

Churches: Community Development is the New Community Service

By Bethany Slack, MPH, ARC Associate in Public Health & Wellness

Churches can have whole-health impacts in their communities. But churches who want to engage the physical needs of a local area need intention, planning, and a fuller picture of Christian love.

At the 2018 GO Conference in February, I attended a workshop called, “Bringing Life to Your Community, “ led by Archbishop Timothy Paul, President of the Council of Churches of Western Massachusetts (CCWM). There he presented a practical vision for engaging the whole-bodied needs of a local area.

The Archbishop reminded us of the insight (often attributed to Teddy Roosevelt), “People don’t care how much you know until they know how much you care.” Members of a community sometimes don’t know how much churches care until they see us helping to address pressing physical needs.

CCWM fleshes out Jesus’ “do unto others” call into thoughtful ways that churches can discover community needs and develop sustainable programs. The main insight I took away from the workshop was the difference between community service and community development.

Community SERVICE vs. Community DEVELOPMENT

When I was growing up, my church took serving the community very seriously. Our small groups and youth groups regularly volunteered at the church’s food pantry or community clothing distribution center. Our hometown of Harrisonburg, VA, was a prime destination for immigration, so our church helped sponsor refugees and immigrants for resettlement in the US.

Our church also maintained a fund for helping out with community needs. My dad administered the fund for many years, instilling in me a value of thinking beyond the needs of our own family. In my adult life, I’ve volunteered at free clinics and resource centers for the homeless. So community outreach is rooted deep within me.

But I would call my outreach experience “community service.” The Archbishop presented a model for something quite different—community development.

As a public health professional at EGC, I’m developing a Boston-based program to help Christian leaders and healthcare professionals across the city convene to address end-of-life care needs. But I’ve not been involved in community development work connected to a particular church body.

Community development involves going out into the community and doing a needs assessment, discovering with local partners:

• What are the needs and opportunities of this community?  

• With whom can we partner?

• What is the role of our church in the community?

• What is our responsibility to the community?

• How can we help build the community around us?

With the projects CCWM has developed from this discovery process, they’re not just giving out food or other items, but they’re trying to build the community’s own capacities. For example, CCWM is involved in mentoring youth, providing counseling, and other activities that help people get back on their feet or overcome their past.

Fullness of Life, Fullness of Ministry

CCWM’s approach is inspired by John 10:10, “The thief comes only to steal and kill and destroy; I have come that they may have life, and have it to the full.” (NIV). For CCWM, “life to the full” includes five pillars of community health: spiritual, educational, economic, health, and social.

According to their “Vision 10:10” strategy, each of these five areas is an opportunity for the church to strengthen its surrounding community. Some of the ways CCWM has invested in these pillars in Springfield neighborhoods include:

• opening a hotel to create jobs and revenue (economic)

• obtaining a grant to mentor youth with incarcerated parents (social)

• providing counseling for gambling and opiate addiction (health, social)

CCWM developed each of their initiatives in response to needs they observed in the community. For example, their interest in treating gambling addiction stems from the arrival of a new casino in Springfield.

My Next Steps

I’d like to see my current church come together to begin conversation about our role in the local community. That kind of shared discovery is not something I’ve seen. Mostly I’ve seen programs develop from the top down from the leadership, or even from the leadership practices of the churches that planted them.

We’re in Belmont, MA, and my husband and I have been a part of the church there since it was planted. As far as I know we haven’t yet held conversation about what it means to be in Belmont or our role in the Belmont community. We’ll need to also have some theological discussion around what it can mean (and doesn’t mean) to “be the church” beyond our walls.

My first step is to get together with one of the elders of the church and say, “Here are my thoughts about our serving the community. What do you think?”

We already have community outreach activities, and I don’t know how they came about. There may be these kinds of discussions going on behind the scenes that I don’t know about. Those of us not on the planting team haven’t yet had much influence on the kinds of community work the church does. So my first step is to connect with my church leadership.

I think God is inviting me to be open to what community development might look like to my church leaders. I’m not in leadership at the church. Yes, community development is on my heart, but I want to hear what’s in the hearts of the leaders too. Anything we do as a church, I’d want it to be coming not from me, but from the church as a whole.

For Reflection

• Many of us attend churches outside of our home neighborhood or city. How does this reality affect our potential for community impact, individually and corporately, for the positive or negative?

• Most of us attend churches that meet in a fixed location, whether owned or rented. How do we view our “place” in the neighborhood? Is it merely a space to gather, or is there potential or even responsibility to play an active role in seeking the good of the community?

Bethany Slack, MPH, MT, is the Public Health and Wellness research associate at EGC. Her passion is to see Jesus’ love translated into improved health and health justice for all, across the lifespan and across the globe.